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Aaron, A., David, N.B., Nicole, S., Lauren, U., David, R., & Robin, N.K. (2017). Impact of Health Literacy on Time Spent Seeking Hand Care. Hand, 1558944717708027. https://www.ncbi.nlm.nih.gov/pubmed/28513193

Adler, J., Saeed, S.A., Eslick, I.S., Provost, L., Margolis, P.A., & Kaplan, H.C. (2016). Appreciating the Nuance of Daily Symptom Variation to Individualize Patient Care. eGEMs, 4(1), 1247. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4909374/

Ahmad, F.S., Kaiser, K., Schifferdecker, K.E., Adachi-Mejia, A.M., Eisenstein, A., Greene, G.J., . . . Fisher, E.S. (2015). Creating Heart Failure-Specific Measures from PROMIS®. Circulation, 132(Suppl 3), A17039. http://circ.ahajournals.org/content/132/Suppl_3/A17039.abstract

Ahmed, S., Ware, P., Gardner, W., Witter, J., Bingham, C.O., 3rd, Khairy, D., & Bartlett, S.J. (2017). Montreal Accord on Patient-Reported Outcomes Use Series- Paper 8: Patient Reported Outcomes (PRO) in Electronic Health Records Can Inform Clinical and Policy Decisions. Journal of Clinical Epidemiology. http://dx/doi.org/10.1016/j.jclinepi.2017.04.011

Al Maghaireh, D.a.F., Abdullah, K.L., Chong, M.C., Chua, Y.P., & Al Kawafha, M.M. (2017). Stress, Anxiety, Depression and Sleep Disturbance among Jordanian Mothers and Fathers of Infants Admitted to Neonatal Intensive Care Unit: A Preliminary Study. Journal of Pediatric Nursing, 36, 132-140. http://dx.doi.org/10.1016/j.pedn.2017.06.007

Alcantara, J., Alcantara, J.D., & Alcantara, J. (2015). The Use of Validated Outcome Measures in the Chiropractic Care of Pregnant Patients: A Systematic Review of the Literature. Complementary Therapies in Clinical Practice, 21(2), 131-136. http://dx.doi.org/10.1016/j.ctcp.2015.01.003

Alcantara, J., Lamont, A.E., Ohm, J., & Alcantara, J. (2017). The Quality of Life of Children under Chiropractic Care Using PROMIS-25: Results from a Practice-Based Research Network. Journal of Alternative and Complementary Medicine. https://www.ncbi.nlm.nih.gov/pubmed/29260883

Alcantara, J., Nazarenko, A.L., Ohm, J., & Alcantara, J. (2017). The Use of the Patient Reported Outcomes Measurement Information System and the Rand Vsq9 to Measure the Quality of Life and Visit-Specific Satisfaction of Pregnant Patients under Chiropractic Care Utilizing the Webster Technique. Journal of Alternative and Complementary Medicine. https://www.ncbi.nlm.nih.gov/pubmed/29260894

Alcantara, J., Ohm, J., & Alcantara, J. (2016). The Use of PROMIS and the Rand Vsq9 in Chiropractic Patients Receiving Care with the Webster Technique. Complementary Therapies in Clinical Practice, 23, 110-116. https://www.ncbi.nlm.nih.gov/pubmed/25990687

Alcantara, J., Ohm, J., & Alcantara, J. (2017). Comparison of Pediatric Self Reports and Parent Proxy Reports Utilizing PROMIS: Results from a Chiropractic Practice-Based Research Network. Complementary Therapies in Clinical Practice, 29, 48-52. https://www.ncbi.nlm.nih.gov/pubmed/29122268

Alcantara, J., Ohm, J., & Alcantara, J. (2017). The Quality of Life of Chiropractors Using PROMIS: Results from a Practice-Based Research Network. Complementary Therapies in Clinical Practice. https://doi.org/10.1016/j.ctcp.2017.09.011

Alexander, A.M., Flynn, K.E., Hahn, E.A., Jeffery, D.D., Keefe, F.J., Reeve, B.B., . . . Weinfurt, K.P. (2014). Improving Patients' Understanding of Terms and Phrases Commonly Used in Self-Reported Measures of Sexual Function. The Journal of Sexual Medicine, 11(8), 1991-1998. http://dx.doi.org/10.1111/jsm.12599

Allen, J., Alpass, F.M., & Stephens, C.V. (2018). The Sensitivity of the Mos Sf-12 and PROMIS® Global Summary Scores to Adverse Health Events in an Older Cohort. Quality of Life Research. https://www.ncbi.nlm.nih.gov/pubmed/29725968

Almario, C.V., Chey, W.D., Khanna, D., Mosadeghi, S., Ahmed, S., Afghani, E., . . . Spiegel, B.M.R. (2016). Impact of National Institutes of Health Gastrointestinal PROMIS Measures in Clinical Practice: Results of a Multicenter Controlled Trial. American Journal of Gastroenterology, 16(4), 462-466.e462. https://www.ncbi.nlm.nih.gov/pubmed/27481311

Alonso, J., Bartlett, S., Rose, M., Aaronson, N., Chaplin, J., Efficace, F., . . . Forrest, C. (2013). The Case for an International Patient-Reported Outcomes Measurement Information System (PROMIS(R)) Initiative. Health and Quality of Life Outcomes, 11(1), 210. http://dx.doi.org/10.1186/1477-7525-11-210

Alschuler, K.N., Jensen, M.P., Goetz, M.C., Smith, A.E., Verrall, A.M., & Molton, I.R. (2012). Effects of Pain and Fatigue on Physical Functioning and Depression in Persons with Muscular Dystrophy. Disability and Health Journal, 5(4), 277-283. http://dx.doi.org/10.1016/j.dhjo.2012.07.002

Alschuler, K.N., Jensen, M.P., Sullivan-Singh, S.J., Borson, S., Smith, A.E., & Molton, I.R. (2013). The Association of Age, Pain, and Fatigue with Physical Functioning and Depressive Symptoms in Persons with Spinal Cord Injury. Journal of Spinal Cord Medicine, 36(5), 483-491. http://dx.doi.org/10.1179/2045772312Y.0000000072

Alves, F.S., Pinto Rde, M., Mendonca, T.M., & Silva, C.H. (2014). Portuguese-Language Translation and Cross-Cultural Adaptation of the Fatigue Domain of Patient-Reported-Outcomes Measurement Information System (PROMIS). Cadernos de Saude Publica, 30(5), 1103-1110. http://dx.doi.org/10.1590/0102-311X00104513

Ameringer, S., Elswick, R.K., Jr., & Smith, W. (2014). Fatigue in Adolescents and Young Adults with Sickle Cell Disease: Biological and Behavioral Correlates and Health-Related Quality of Life. Journal of Pediatric Oncology Nursing, 31(1), 6-17. http://dx.doi.org/10.1177/1043454213514632

Ameringer, S., Elswick, R.K., Jr., Menzies, V., Robins, J.L., Starkweather, A., Walter, J., . . . Jallo, N. (2016). Psychometric Evaluation of the Patient-Reported Outcomes Measurement Information System Fatigue-Short Form across Diverse Populations. Nursing Research, 65(4), 279-289. https://www.ncbi.nlm.nih.gov/pubmed/27362514

Amtmann, D., Askew, R.L., Kim, J., Chung, H., Ehde, D.M., Bombardier, C.H., . . . Johnson, K.L. (2015). Pain Affects Depression through Anxiety, Fatigue, and Sleep in Multiple Sclerosis. Rehabilitation Psychology, 60(1), 81-90. http://dx.doi.org/10.1037/rep0000027

Amtmann, D., Bamer, A.M., Kim, J., Chung, H., & Salem, R. (2017). People with Multiple Sclerosis Report Significantly Worse Symptoms and Health Related Quality of Life Than the Us General Population as Measured by PROMIS and Neuroqol Outcome Measures. Disability and Health Journal. http://doi.org/10.1016/j.dhjo.2017.04.008

Amtmann, D., Cook, K.F., Jensen, M.P., Chen, W.-H., Choi, S., Revicki, D., . . . Callahan, L. (2010). Development of a PROMIS Item Bank to Measure Pain Interference. Pain, 150(1), 173-182. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2916053/

Amtmann, D., Cook, K.F., Johnson, K.L., & Cella, D. (2011). The PROMIS Initiative: Involvement of Rehabilitation Stakeholders in Development and Examples of Applications in Rehabilitation Research. Archives of Physical Medicine and Rehabilitation, 92(10, Supplement), S12-S19. http://dx.doi.org/10.1016/j.apmr.2011.04.025

Amtmann, D., Kim, J., Chung, H., Askew, R.L., Park, R., & Cook, K.F. (2016). Minimally Important Differences for Patient Reported Outcomes Measurement Information System Pain Interference for Individuals with Back Pain. Journal of Pain Research, 9, 251-255. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4854267/

Amtmann, D., Kim, J., Chung, H., Bamer, A.M., Askew, R.L., Wu, S., . . . Johnson, K.L. (2014). Comparing CESD-10, PHQ-9, and PROMIS Depression Instruments in Individuals with Multiple Sclerosis. Rehabilitation Psychology, 59(2), 220-229. http://dx.doi.org/10.1037/a0035919

Amtmann, D., McMullen, K., Bamer, A., Fauerbach, J.A., Gibran, N.S., Herndon, D., . . . Miller, A.C. (2017). National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System: Review of Program and Database. Archives of Physical Medicine and Rehabilitation. https://www.ncbi.nlm.nih.gov/pubmed/28989076

Anand, L., Du Bois, S.N., Sher, T.G., & Grotkowski, K. (2017). Defying Tradition: Gender Roles in Long-Distance Relationships. The Family Journal, 26(1), 22-30. https://doi.org/10.1177/1066480717731342

Ananthakrishnan, A.N., Long, M.D., Martin, C.F., Sandler, R.S., & Kappelman, M.D. (2013). Sleep Disturbance and Risk of Active Disease in Patients with Crohn's Disease and Ulcerative Colitis. Clinical Gastroenterology and Hepatology, 11(8), 965-971. http://dx.doi.org/10.1016/j.cgh.2013.01.021

Anatchkova, M., & Bjorner, J. (2010). Health and Role Functioning: The Use of Focus Groups in the Development of an Item Bank. Quality of Life Research, 19(1), 111-123. http://dx.doi.org/10.1007/s11136-009-9570-3

Anderson, M.R., Baumhauer, J.F., DiGiovanni, B.F., Flemister, S., Ketz, J.P., Oh, I., & Houck, J.R. (2018). Determining Success or Failure after Foot and Ankle Surgery Using Patient Acceptable Symptom State (Pass) and Patient Reported Outcome Information System (PROMIS). Foot and Ankle International. https://www.ncbi.nlm.nih.gov/pubmed/29791196

Anthony, C.A., Glass, N., Hancock, K., Bollier, M., Hettrich, C.M., & Wolf, B.R. (2017). Preoperative Performance of the Patient-Reported Outcomes Measurement Information System in Patients with Rotator Cuff Pathology. Arthroscopy. https://www.ncbi.nlm.nih.gov/pubmed/28655475

Apple, A.C., Ryals, A.J., Alpert, K.I., Wagner, L.I., Shih, P.-A., Dokucu, M., . . . Wang, L. (2017). Subtle Hippocampal Deformities in Breast Cancer Survivors with Reduced Episodic Memory and Self-Reported Cognitive Concerns. NeuroImage.Clinical. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5369871/

Armstrong, N.M., Gitlin, L.N., Parisi, J.M., Carlson, M.C., Rebok, G.W., & Gross, A.L. (2017). E Pluribus Unum: Harmonization of Physical Functioning across Intervention Studies of Middle-Aged and Older Adults. PLoS ONE, 12(7), e0181746. https://www.ncbi.nlm.nih.gov/pubmed/28753644

Arnedt, J.T. (2012). PROMIS™ of Improved Tools for Assessing Sleep and Wake Function: Commentary on “Development of Short Forms from the PROMIS™ Sleep Disturbance and Sleep-Related Impairment Item Banks”. Behavioral Sleep Medicine, 10(1), 25-27. http://dx.doi.org/10.1080/15402002.2012.636267

Arvanitis, M., DeWalt, D.A., Martin, C.F., Long, M.D., Chen, W., Jaeger, B., . . . Kappelman, M.D. (2016). Patient-Reported Outcomes Measurement Information System in Children with Crohn's Disease. Journal of Pediatrics, 174, 153–159.e152. http://dx.doi.org/10.1016/j.jpeds.2016.03.069

Askew, R.L., Cook, K.F., Keefe, F.J., Nowinski, C.J., Cella, D., Revicki, D.A., . . . Amtmann, D. (2016). A PROMIS Measure of Neuropathic Pain Quality. Value in Health, 19(5), 623-630. http://dx.doi.org/10.1016/j.jval.2016.02.009

Askew, R.L., Cook, K.F., Revicki, D.A., Cella, D., & Amtmann, D. (2016). Clinical Validity of PROMIS® Pain Interference and Pain Behavior in Diverse Clinical Populations. Journal of Clinical Epidemiology, Epub ahead of print. http://dx.doi.org/10.1016/j.jclinepi.2015.08.035

Askew, R.L., Kim, J., Chung, H., Cook, K.F., Johnson, K., & Amtmann, D. (2013). Development of a Crosswalk for Pain Interference Measured by the Bpi and PROMIS Pain Interference Short Form. Quality of Life Research, 22(10), 2769-2776. http://dx.doi.org/10.1007/s11136-013-0398-5

Austin, D.C., Torchia, M.T., Moschetti, W.E., Jevsevar, D.S., & Keeney, B.J. (2018). Patient Outcomes after Total Knee Arthroplasty in Patients Older Than 80 Years. Journal of Arthroplasty. https://www.ncbi.nlm.nih.gov/pubmed/30100133

Azar, M., Rice, D.B., Kwakkenbos, L., Carrier, M.-E., Shrier, I., Bartlett, S.J., . . . Thombs, B.D. (2017). Exercise Habits and Factors Associated with Exercise in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network (Spin) Cohort Study. Disability and Rehabilitation, 1-7. https://www.ncbi.nlm.nih.gov/pubmed/28478701

Babington, J.R., Edwards, A., Wright, A., Dykstra, T., Friedman, A.S., & Sethi, R.K. (2017). Patient-Reported Outcome Measures: Utility for Predicting Spinal Surgery in an Integrated Spine Practice. PM & R: The Journal of Injury, Function, and Rehabilitation. https://www.ncbi.nlm.nih.gov/pubmed/29288142

Bacalao, E.J., Greene, G.J., Beaumont, J.L., Eisenstein, A., Muftic, A., Mandelin, A.M., . . . Ruderman, E.M. (2017). Standardizing and Personalizing the Treat to Target (T2T) Approach for Rheumatoid Arthritis Using the Patient-Reported Outcomes Measurement Information System (PROMIS): Baseline Findings on Patient-Centered Treatment Priorities. Clinical Rheumatology, 36(8), 1729-1736. https://www.ncbi.nlm.nih.gov/pubmed/28653263

Badawy, S.M., Barrera, L., Cai, S., & Thompson, A.A. (2018). Association between Participants' Characteristics, Patient-Reported Outcomes, and Clinical Outcomes in Youth with Sickle Cell Disease. BioMed Research International, 2018. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6076920/

Badawy, S.M., Thompson, A.A., & Liem, R.I. (2018). Beliefs About Hydroxyurea in Youth with Sickle Cell Disease. Hematology/Oncology and Stem Cell Therapy. https://www.ncbi.nlm.nih.gov/pubmed/29397333

Badawy, S.M., Thompson, A.A., Lai, J.-S., Penedo, F.J., Rychlik, K., & Liem, R.I. (2017). Adherence to Hydroxyurea, Health-Related Quality of Life Domains, and Patients’ Perceptions of Sickle Cell Disease and Hydroxyurea: A Cross-Sectional Study in Adolescents and Young Adults. Health and Quality of Life Outcomes, 15, 136. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5498866/

Badawy, S.M., Thompson, A.A., Penedo, F.J., Lai, J.-S., Rychlik, K., & Liem, R.I. (2017). Barriers to Hydroxyurea Adherence and Health-Related Quality of Life in Adolescents and Young Adults with Sickle Cell Disease. European Journal of Haematology, 98(6), 608-614. https://www.ncbi.nlm.nih.gov/pubmed/28306171

Badger, T.A., Heitkemper, M., Lee, K.A., & Bruner, D.W. (2014). An Experience with the Patient-Reported Outcomes Measurement Information System: Pros and Cons and Unanswered Questions. Nursing Outlook, 62(5), 332-338. http://dx.doi.org/10.1016/j.outlook.2014.06.009

Badr, H., Lipnick, D., Gupta, V., & Miles, B. (2016). Survivorship Challenges and Information Needs after Radiotherapy for Oral Cancer. Journal of Cancer Education, Epub ahead of print, 1-9. http://dx.doi.org/10.1007/s13187-016-1048-8

Bae, D.S., Canizares, M.F., Miller, P.E., Waters, P.M., & Goldfarb, C.A. (2017). Functional Impact of Congenital Hand Differences: Early Results from the Congenital Upper Limb Differences (Could) Registry. Journal of Hand Surgery. https://www.ncbi.nlm.nih.gov/pubmed/29241842

Bajaj, J.S., Thacker, L.R., Wade, J.B., Sanyal, A.J., Heuman, D.M., Sterling, R.K., . . . Revicki, D.A. (2011). PROMIS Computerised Adaptive Tests Are Dynamic Instruments to Measure Health-Related Quality of Life in Patients with Cirrhosis. Alimentary Pharmacology and Therapeutics, 34(9), 1123-1132. http://dx.doi.org/10.1111/j.1365-2036.2011.04842.x

Bajaj, J.S., White, M.B., Unser, A.B., Ganapathy, D., Fagan, A., Gavis, E.A., . . . Wade, J.B. (2016). Cirrhotic Patients Have Good Insight into Their Daily Functional Impairment Despite Prior Hepatic Encephalopathy: Comparison with PROMIS Norms. Metabolic Brain Disease, 31(5), 1199–1203. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5033693/

Bakshi, N., Lukombo, I., Belfer, I., & Krishnamurti, L. (2018). Pain Catastrophizing Is Associated with Poorer Health-Related Quality of Life in Pediatric Patients with Sickle Cell Disease. Journal of Pain Research, 11, 947-953. https://www.ncbi.nlm.nih.gov/pubmed/29773954

Bakshi, N., Lukombo, I., Belfer, I., & Krishnamurti, L. (2018). Quantitative Sensory Testing Is Feasible and Is Well-Tolerated in Patients with Sickle Cell Disease Following a Vaso-Occlusive Episode. Journal of Pain Research, 11, 435-443. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5827673/

Bakshi, N., Ross, D., & Krishnamurti, L. (2018). Presence of Pain on Three or More Days of the Week Is Associated with Worse Patient Reported Outcomes in Adults with Sickle Cell Disease. Journal of Pain Research, 11, 313-318. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5810514/

Balachandran, A., Martins, M.M., De Faveri, F.G., Alan, O., Cetinkaya, F., & Signorile, J.F. (2016). Functional Strength Training: Seated Machine Vs Standing Cable Training to Improve Physical Function in Elderly. Experimental Gerontology, 82, 131-138. http://dx.doi.org/10.1016/j.exger.2016.06.012

Balachandran, A.T., Gandia, K., Jacobs, K.A., Streiner, D.L., Eltoukhy, M., & Signorile, J.F. (2017). Power Training Using Pneumatic Machines Vs. Plate-Loaded Machines to Improve Muscle Power in Older Adults. Experimental Gerontology, 98, 134-142. https://www.ncbi.nlm.nih.gov/pubmed/28804046

Bamonti, P.M., Moye, J., & Naik, A.D. (2018). Pain Is Associated with Continuing Depression in Cancer Survivors. Psychology, Health and Medicine, 1-14. https://www.ncbi.nlm.nih.gov/pubmed/29901408

Bandayrel, K., & Johnston, B.C. (2014). Recent Advances in Patient and Proxy-Reported Quality of Life Research. Health and Quality of Life Outcomes, 12(1), 110. http://dx.doi.org/10.1186/s12955-014-0110-7

Banerjee, R., Yi, J.C., Majhail, N.S., Jim, H.S.L., Uberti, J., Whalen, V., . . . Syrjala, K.L. (2018). Impact of Extremely Long Driving Distance on Distress and Physical Function in Hematopoietic Cell Transplant Recipients. Biology of Blood and Marrow Transplantation, 24(3), S257-S258. https://doi.org/10.1016/j.bbmt.2017.12.188

Barile, J., Mitchell, S., Thompson, W., Zack, M., Reeve, B., & Cella, D. (2015). Patterns of Chronic Conditions and Their Associations with Behaviors and Quality of Life, 2010. Preventing Chronic Disease, 12, 150179. http://dx.doi.org/10.5888/pcd12.150179

Barile, J.P., Reeve, B.B., Smith, A.W., Zack, M.M., Mitchell, S.A., Kobau, R., . . . Thompson, W.W. (2013). Monitoring Population Health for Healthy People 2020: Evaluation of the NIH PROMIS® Global Health, Cdc Healthy Days, and Satisfaction with Life Instruments. Quality of Life Research, 22(6), 1201-1211. http://dx.doi.org/10.1007/s11136-012-0246-z

Barnes, E.L., Herfarth, H.H., Sandler, R.S., Chen, W., Jaeger, E., Nguyen, V.M., . . . Long, M.D. (2017). Pouch-Related Symptoms and Quality of Life in Patients with Ileal Pouch-Anal Anastomosis. Inflammatory Bowel Diseases. https://www.ncbi.nlm.nih.gov/pubmed/28426474

Barr, C., Marois, M., Sim, I., Schmid, C., Wilsey, B., Ward, D., . . . Kravitz, R. (2015). The Preempt Study - Evaluating Smartphone-Assisted N-of-1 Trials in Patients with Chronic Pain: Study Protocol for a Randomized Controlled Trial. Trials, 16(1), 67. http://dx.doi.org/10.1186/s13063-015-0590-8

Barsevick, A.M., Irwin, M.R., Hinds, P., Miller, A., Berger, A., Jacobsen, P., . . . Cella, D. (2013). Recommendations for High-Priority Research on Cancer-Related Fatigue in Children and Adults. Journal of the National Cancer Institute, 105(19), 1432-1440. http://dx.doi.org/ 10.1093/jnci/djt242

Bartlett, S.J., Gutierrez, A.K., Butanis, A., Bykerk, V.P., Curtis, J.R., Ginsberg, S., . . . Bingham, C.O. (2018). Combining Online and in-Person Methods to Evaluate the Content Validity of PROMIS Fatigue Short Forms in Rheumatoid Arthritis. Quality of Life Research. https://www.ncbi.nlm.nih.gov/pubmed/29797175

Bartlett, S.J., Orbai, A.-M., Duncan, T., DeLeon, E., Ruffing, V., Clegg-Smith, K., & Bingham, C.O., III. (2015). Reliability and Validity of Selected PROMIS Measures in People with Rheumatoid Arthritis. PLoS ONE, 10(9), e0138543. http://dx.doi.org/10.1371/journal.pone.0138543

Bartlett, S.J., Witter, J., Cella, D., & Ahmed, S. (2017). Montreal Accord on Patient-Reported Outcomes Use Series – Paper 6: Creating National Initiatives to Support Patient Reported Outcomes (PRO) Development and Use—the PROMIS Example. Journal of Clinical Epidemiology. http://dx/doi.org/10.1016/j.jclinepi.2017.04.015

Basch, E., Abernethy, A.P., Mullins, C.D., Reeve, B.B., Smith, M.L., Coons, S.J., . . . Tunis, S. (2012). Recommendations for Incorporating Patient-Reported Outcomes into Clinical Comparative Effectiveness Research in Adult Oncology. Journal of Clinical Oncology, 30(34), 4249-4255. http://dx.doi.org/10.1200/jco.2012.42.5967

Basch, E.M., Reeve, B.B., Mitchell, S.A., Clauser, S.B., Minasian, L., Sit, L., . . . Bruner, D. (2011). Electronic Toxicity Monitoring and Patient-Reported Outcomes. Cancer Journal, 17(4), 231-234. http://dx.doi.org/10.1097/PPO.0b013e31822c28b3 00130404-201107000-00007 [pii]

Bass, M., Morris, S., & Neapolitan, R. (2015). Utilizing Multidimensional Computer Adaptive Testing to Mitigate Burden with Patient Reported Outcomes. AMIA Annual Symposium Proceedings, 2015, 320-328. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4765639/

Bateman, E., & Keefe, D. (2011). Patient-Reported Outcomes in Supportive Care. Seminars in Oncology, 38(3), 358-361. http://dx.doi.org/10.1053/j.seminoncol.2011.03.003

Batterham, P.J., Brewer, J.L., Tjhin, A., Sunderland, M., Carragher, N., & Calear, A.L. (2015). Systematic Item Selection Process Applied to Developing Item Pools for Assessing Multiple Mental Health Problems. Journal of Clinical Epidemiology, 68(8), 913-919. https://www.ncbi.nlm.nih.gov/pubmed/25953659

Bauer, P.J., Dikmen, S.S., Heaton, R.K., Mungas, D., Slotkin, J., & Beaumont, J.L. (2013). NIH Toolbox Cognition Battery (Cb): Measuring Episodic Memory. Chapter III. Monographs of the Society for Research in Child Development, 78(4), 34-48. http://dx.doi.org/10.1111/mono.12033

Baum, G., Basen-Engquist, K., Swartz, M.C., Parker, P.A., & Carmack, C.L. (2014). Comparing PROMIS Computer-Adaptive Tests to the Brief Symptom Inventory in Patients with Prostate Cancer. Quality of Life Research, 23(7), 2031-2035. http://dx.doi.org/10.1007/s11136-014-0647-2

Baumhauer, J., Anderson, M., Saltzman, C., Hung, M., Nickisch, F., Barg, A., . . . Houck, J. (2017). Generalizability and Validation of PROMIS Scores to Predict Surgical Success in Foot and Ankle Patients: A Tale of Two Academic Centers. Foot & Ankle Orthopaedics, 2(3). https://doi.org/10.1177/2473011417S000026

Baumhauer, J.F. (2017). Patient-Reported Outcomes — Are They Living up to Their Potential? New England journal of medicine, 377(1), 6-9. https://www.ncbi.nlm.nih.gov/pubmed/28679102

Beaumont, J.L., Cella, D., Phan, A.T., Choi, S., Liu, Z., & Yao, J.C. (2012). Comparison of Health-Related Quality of Life in Patients with Neuroendocrine Tumors with Quality of Life in the General Us Population. Pancreas, 41(3), 461-466. http://dx.doi.org/10.1097/MPA.0b013e3182328045

Becker, H., Stuifbergen, A., & Morrison, J. (2012). Promising New Approaches to Assess Cognitive Functioning in People with Multiple Sclerosis. International Journal of MS Care, 14(2), 71-76. http://dx.doi.org/10.7224/1537-2073-14.2.71

Becker, H., Stuifbergen, A., Lee, H., & Kullberg, V. (2014). Reliability and Validity of PROMIS Cognitive Abilities and Cognitive Concerns Scales among People with Multiple Sclerosis. International Journal of MS Care, 16(1), 1-8. http://dx.doi.org/10.7224/1537-2073.2012-047

Beckmann, J.T., Hung, M., Bounsanger, J., Wylie, J.D., Granger, E.K., & Tashjian, R.Z. (2015). Psychometric Evaluation of the PROMIS Physical Function Computerized Adaptive Test in Comparison to the American Shoulder and Elbow Surgeons Score and Simple Shoulder Test in Patients with Rotator Cuff Disease. Journal of Shoulder and Elbow Surgery, 24(12), 1961-1967. http://dx.doi.org/10.1016/j.jse.2015.06.025

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Shaw, B.E., Syrjala, K.L., Onstad, L.E., Chow, E.J., Flowers, M.E., Jim, H., . . . Lee, S.J. (2017). PROMIS Measures Can Be Used to Assess Symptoms and Function in Long-Term Hematopoietic Cell Transplantation Survivors. Cancer. https://www.ncbi.nlm.nih.gov/pubmed/29072787

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Sherman, S.L., Garrone, A.J., & Voss, E.E. (2018). Correlation of Patient Reported Outcome Measurement Information System Computer Adaptive Test (PROMIS-Cat) and Knee Injury and Osteoarthritis Outcome Score (Koos) in Knee Osteotomy and Cartilage Procedures. Orthopaedic Journal of Sports Medicine, 6(7_suppl4), 2325967118S2325900102. http://journals.sagepub.com/doi/abs/10.1177/2325967118S00102

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Sinha, P., Wong, A.K., Kallogjeri, D., & Piccirillo, J.F. (2018). Baseline Cognition Assessment among Patients with Oropharyngeal Cancer Using PROMIS and NIH Toolbox. JAMA Otolaryngology--Head & Neck Surgery. http://dx.doi.org/10.1001/jamaoto.2018.0283

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Smith, A., Pennington, A., Carter, B., Gething, S., Price, M., White, J., . . . Hewitt, J. (2018). Acceptability of the Method of Administration of a Patient-Reported Outcome Measure (Prom) with Stroke Survivors, a Randomised Controlled Trial Protocol. Trials, 19(1), 349. https://www.ncbi.nlm.nih.gov/pubmed/29970156

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Solorio, R., Ayala, N.C., Paez, E., Skalicky, A.M., & Morales, L.S. (2016). Use of Cognitive Interviews to Adapt PROMIS Measurement Items for Spanish Speakers Living with HIV. AIDS Research and Treatment, Epub ahead of print. http://dx.doi.org/10.1155/2016/8340863

Sorondo, B., Allen, A., Fathima, S., Bayleran, J., & Sabbagh, I. (2016). Patient Portal as a Tool for Enhancing Patient Experience and Improving Quality of Care in Primary Care Practices. eGEMs, 4(1), 1262. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5302860/

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Yoon, A.P., Qi, J., Brown, D.L., Kim, H.M., Hamill, J.B., Erdmann-Sager, J., . . . Wilkins, E.G. (2018). Outcomes of Immediate Versus Delayed Breast Reconstruction: Results of a Multicenter Prospective Study. The Breast, 37, 72-79. https://www.ncbi.nlm.nih.gov/pubmed/29102781

Yorkston, K., Baylor, C., & Mach, H. (2017). Factors Associated with Communicative Participation in Amyotrophic Lateral Sclerosis. Journal of Speech, Language, and Hearing Research, 60(6S), 1791-1797. https://www.ncbi.nlm.nih.gov/pubmed/28655040

Yorkston, K.M., Johnson, K., Boesflug, E., Skala, J., & Amtmann, D. (2010). Communicating About the Experience of Pain and Fatigue in Disability. Quality of Life Research, 19(2), 243-251. http://dx.doi.org/10.1007/s11136-009-9572-1

Yost, K.J., Eton, D.T., Garcia, S.F., & Cella, D. (2010). Minimally Important Differences for Six Patient-Reported Outcome Measurement Information System Cancer (PROMIS-Cancer) Scales. Quality of Life Research, 19(Suppl 1, ), Abstract 1483. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3076200/

Yost, K.J., Eton, D.T., Garcia, S.F., & Cella, D. (2011). Minimally Important Differences Were Estimated for Six Patient-Reported Outcomes Measurement Information System-Cancer Scales in Advanced-Stage Cancer Patients. Journal of Clinical Epidemiology, 64(5), 507-516. http://dx.doi.org/10.1016/j.jclinepi.2010.11.018

Yost, K.J., Waller, N.G., Lee, M.K., & Vincent, A. (2017). The PROMIS Fatigue Item Bank Has Good Measurement Properties in Patients with Fibromyalgia and Severe Fatigue. Quality of Life Research, 1-10. https://www.ncbi.nlm.nih.gov/pubmed/28138862

Young, H.-J., Herman, C., Mehta, T., Vitemb, A., & Rimmer, J. (2017). Movement-to-Music Program Improves Physical Function and Sleep Quality in Multiple Sclerosis: A Three-Arm Rct. Archives of Physical Medicine and Rehabilitation, 98(10), e8. https://doi.org/10.1016/j.apmr.2017.08.023

Young, H.-J., Mehta, T.S., Herman, C., Wang, F., & Rimmer, J.H. (2018). The Effects of Movement-to-Music (M2m) and Adapted Yoga on Physical and Psychosocial Outcomes in People with Multiple Sclerosis. Archives of Physical Medicine and Rehabilitation. https://www.ncbi.nlm.nih.gov/pubmed/30092206

Yount, S.E., Beaumont, J.L., Chen, S.-Y., Kaiser, K., Wortman, K., Van Brunt, D.L., . . . Cella, D. (2016). Health-Related Quality of Life in Patients with Idiopathic Pulmonary Fibrosis. Lung, 194(2), 227-234. https://www.ncbi.nlm.nih.gov/pubmed/26861885

Yu, L., Buysse, D.J., Germain, A., Moul, D.E., Stover, A., Dodds, N.E., . . . Pilkonis, P.A. (2011). Development of Short Forms from the PROMIS Sleep Disturbance and Sleep-Related Impairment Item Banks. Behavioral Sleep Medicine, 10(1), 6-24. http://dx.doi.org/10.1080/15402002.2012.636266

Zaid, T., Burzawa, J., Basen-Engquist, K., Bodurka, D.C., Ramondetta, L.M., Brown, J., & Frumovitz, M. (2014). Use of Social Media to Conduct a Cross-Sectional Epidemiologic and Quality of Life Survey of Patients with Neuroendocrine Carcinoma of the Cervix: A Feasibility Study. Gynecologic Oncology, 132(1), 149-153. http://dx.doi.org/10.1016/j.ygyno.2013.10.015

Zanocco, K., Butt, Z., Kaltman, D., Elaraj, D., Cella, D., Holl, J.L., & Sturgeon, C. (2015). Improvement in Patient-Reported Physical and Mental Health after Parathyroidectomy for Primary Hyperparathyroidism. Surgery, 158(3), 837-845. http://dx.doi.org/10.1016/j.surg.2015.03.054

Zdziarski-Horodyski, L., Horodyski, M., Sadasivan, K.K., Hagen, J., Vasilopoulos, T., Patrick, M., . . . Vincent, H.K. (2018). An Integrated-Delivery-of-Care Approach to Improve Patient Reported Physical Function and Mental Wellbeing after Orthopedic Trauma: Study Protocol for a Randomized Controlled Trial. Trials, 19(1), 32. https://www.ncbi.nlm.nih.gov/pubmed/29325583

Zhao, F., Cella, D., Manola, J., DiPaola, R.S., Wagner, L.I., & Haas, N.S.B. (2017). Fatigue among Patients with Renal Cell Carcinoma Receiving Adjuvant Sunitinib or Sorafenib: Patient-Reported Outcomes of Ecog-Acrin E2805 Trial. Supportive Care in Cancer. https://www.ncbi.nlm.nih.gov/pubmed/29274030

Zhao, Y. (2016). Impact of IRT Item Misfit on Score Estimates and Severity Classifications: An Examination of PROMIS Depression and Pain Interference Item Banks. Quality of Life Research, 1-10. https://www.ncbi.nlm.nih.gov/pubmed/27909853

Zheng, D.J., Krull, K.R., Chen, Y., Diller, L., Yasui, Y., Leisenring, W., . . . Kadan-Lottick, N.S. (2018). Long-Term Psychological and Educational Outcomes for Survivors of Neuroblastoma: A Report from the Childhood Cancer Survivor Study. Cancer. doi:10.1002/cncr.31379

Zucker, N., Mauro, C., Craske, M., Wagner, H.R., Datta, N., Hopkins, H., . . . Egger, H. (2017). Acceptance-Based Interoceptive Exposure for Young Children with Functional Abdominal Pain. Behaviour Research and Therapy. https://doi.org/10.1016/j.brat.2017.07.009

Zumpano, C.E., Mendonça, T.M.d.S., Silva, C.H.M.d., Correia, H., Arnold, B., & Pinto, R.d.M.C. (2017). Adaptação Transcultural E Validação Da Escala De Saúde Global Do PROMIS Para a Língua Portuguesa. Cadernos de Saude Publica, 33(article in Portugese). http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0102-311X2017000104001&nrm=iso

Zuniga, K.E., & Fernandez, J. (2017). Dietary Inflammatory Index and Objective and Subjective Memory Impairments in Breast Cancer Survivors. FASEB Journal, 31(1 Supplement), 790.736. http://www.fasebj.org/content/31/1_Supplement/790.36.abstract

Updated 8/22/18

Allen, J., Alpass, F.M., & Stephens, C.V. (2018). The Sensitivity of the Mos SF-12 and PROMIS® Global Summary Scores to Adverse Health Events in an Older Cohort. Quality of Life Research. https://www.ncbi.nlm.nih.gov/pubmed/29725968

Anderson, M.R., Jeff, R.H., Charles, L.S., Man, H., Florian, N., Alexej, B., . . . Judith, F.B. (2018). Validation and Generalizability of Preoperative PROMIS Scores to Predict Postoperative Success in Foot and Ankle Patients. Foot and Ankle International. https://www.ncbi.nlm.nih.gov/pubmed/29620940

Badawy, S.M., Thompson, A.A., & Liem, R.I. (2018). Beliefs About Hydroxyurea in Youth with Sickle Cell Disease. Hematology/Oncology and Stem Cell Therapy. https://www.ncbi.nlm.nih.gov/pubmed/29397333

Bamonti, P.M., Moye, J., & Naik, A.D. (2018). Pain Is Associated with Continuing Depression in Cancer Survivors. Psychology, Health and Medicine, 1-14. https://www.ncbi.nlm.nih.gov/pubmed/29901408

Bernstein, C.N., Zhang, L., Lix, L.M., Graff, L.A., Walker, J.R., Fisk, J.D., . . . Marrie, R.A. (2018). The Validity and Reliability of Screening Measures for Depression and Anxiety Disorders in Inflammatory Bowel Disease. Inflammatory Bowel Diseases. https://doi.org/10.1093/ibd/izy068

Dewitt, B., Feeny, D., Fischhoff, B., Cella, D., Hays, R.D., Hess, R., . . . Hanmer, J. (2018). Estimation of a Preference-Based Summary Score for the Patient-Reported Outcomes Measurement Information System: The PROMIS®-Preference (PROPr) Scoring System. Medical Decision Making. https://www.ncbi.nlm.nih.gov/pubmed/29944456

Domingo, S., Kinzy, T., Thompson, N., Gales, S., Stone, L., & Sullivan, A. (2018). Factors Associated with Sexual Dysfunction in Individuals with Multiple Sclerosis: Implications for Assessment and Treatment. International Journal of MS Care, 20(4), 191-197.

Erker, C., Yan, K., Zhang, L., Bingen, K., Flynn, K.E., & Panepinto, J. (2018). Impact of Pediatric Cancer on Family Relationships. Cancer Medicine. https://www.ncbi.nlm.nih.gov/pubmed/29577633

Flynn, D., Eaton, L.H., Langford, D.J., Ieronimakis, N., McQuinn, H., Burney, R.O., . . . Doorenbos, A.Z. (2018). A Smart Design to Determine the Optimal Treatment of Chronic Pain among Military Personnel. Contemporary Clinical Trials. https://www.ncbi.nlm.nih.gov/pubmed/30145267

Fraser, J.J., & Hertel, J. (2018). Preinjury to Postinjury Disablement and Recovery after a Lateral Ankle Sprain: A Case Report. Journal of Athletic Training. https://www.ncbi.nlm.nih.gov/pubmed/30133319

Gerhardt, W.E., Mara, C.A., Kudel, I., Morgan, E.M., Schoettker, P.J., Napora, J., . . . Alessandrini, E.A. (2018). Systemwide Implementation of Patient-Reported Outcomes in Routine Clinical Care at a Children's Hospital. Joint Commission Journal on Quality and Patient Safety, 44(8), 441-453. https://www.ncbi.nlm.nih.gov/pubmed/30071964

Goswami, S., Mongelli, M., Peipert, B.J., Helenowski, I., Yount, S.E., & Sturgeon, C. (2018). Benchmarking Health-Related Quality of Life in Thyroid Cancer Versus Other Cancers and United States Normative Data. Surgery. https://doi.org/10.1016/j.surg.2018.06.042

Hanish, A., E. , & Han, J., C. (2018). Delayed Onset of Sleep in Adolescents with Pax6 Haploinsufficiency. Biological Research for Nursing. https://www.ncbi.nlm.nih.gov/pubmed/29343077

Izadi, Z., Gandrup, J., Katz, P.P., & Yazdany, J. (2018). Patient-Reported Outcome Measures for Use in Clinical Trials of Sle: A Review. Lupus Science & Medicine, 5(1). 10.1136/lupus-2018-000279

Jha, S., Fratzl-Zelman, N., Roschger, P., Papadakis, G.Z., Cowen, E.W., Kang, H., . . . Bhattacharyya, T. (2018). Distinct Clinical and Pathological Features of Melorheostosis Associated with Somatic Map2k1 Mutations. Journal of Bone and Mineral Research. https://www.ncbi.nlm.nih.gov/pubmed/30138550

Kadri, O., Jildeh, T.R., Meldau, J.E., Blanchett, J., Borowsky, P., Muh, S., . . . Makhni, E.C. (2018). How Long Does It Take for Patients to Complete PROMIS Scores?: An Assessment of PROMIS Cat Questionnaires Administered at an Ambulatory Sports Medicine Clinic. Orthopaedic Journal of Sports Medicine, 6(8), 2325967118791180. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6096684/

Katzan, I.L., Thompson, N.R., Uchino, K., & Lapin, B. (2018). The Most Affected Health Domains after Ischemic Stroke. Neurology. https://www.ncbi.nlm.nih.gov/pubmed/29592886

Lapin, B., Udeh, B., Bautista, J.F., & Katzan, I.L. (2018). Patient Experience with Patient-Reported Outcome Measures in Neurologic Practice. Neurology. https://www.ncbi.nlm.nih.gov/pubmed/30135254

Medina, S.H., Nadarajah, V., Jauregui, J.J., Smuda, M.P., Foster, M., Meredith, S.J., . . . Henn, R.F. (2018). Orthopaedic Surgery Patients Who Use Recreational Marijuana Have Less Pre-Operative Pain. International Orthopaedics. https://www.ncbi.nlm.nih.gov/pubmed/30135987

Myers, J.S., Mitchell, M., Krigel, S., Steinhoff, A., Boyce-White, A., Van Goethem, K., . . . Bender, C.M. (2018). Qigong Intervention for Breast Cancer Survivors with Complaints of Decreased Cognitive Function. Supportive Care in Cancer. https://www.ncbi.nlm.nih.gov/pubmed/30128855

Pfoh, E.R., & Rothberg, M.B. (2018). Use of Pros in Primary Care: PROMIS or Disappointment? Journal of General Internal Medicine. https://www.ncbi.nlm.nih.gov/pubmed/29872957

Sharma, M., Ugiliweneza, B., Beswick, J., & Boakye, M. (2018). Concurrent Validity and Comparative Responsiveness of PROMIS - SF Versus Legacy Measures in the Cervical and Lumbar Spine Population: Longitudinal Analysis from Baseline to Post Surgery. World Neurosurgery. https://doi.org/10.1016/j.wneu.2018.04.131

Wells, R., Ejem, D., Dionne-Odom, J.N., Bagcivan, G., Keebler, K., Frost, J., . . . Bakitas, M. (2018). Protocol Driven Palliative Care Consultation: Outcomes of the Enable Chf-Pc Pilot Study. Heart and Lung. https://www.ncbi.nlm.nih.gov/pubmed/30143363

Laatste update 1-10-2018